Author Archives: Denise

Jean Hotz – Rest in Peace

It is with great sadness that we heard of the death of Jean Hotz.  Jean was the founder of Cystinosis Foundation USA and was involved in organising conferences in the US and Europe for many years.  She provided much support to countless families and forged connections all over the world.  We send our condolences to Jean’s family and to the wider cystinosis community for their loss.  Rest in Peace.