Who we are

How to contact us:

CNE is delighted to have member organisations from across Europe, and some from further afield.

Please don’t hesitate to use the postal and email address below.


Our Partners

  • Patients all over Europe living in countries not yet having a national cystinosis support group
  • EURORDIS – Rare diseases Europe
  • FEDERG – Fed. of Europ. Associations of patients affected by renal genetic diseases
  • European reference centers and competence centers for cystinosis
  • Health care providers and researchers in Europe and all over the world

Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1, Ireland

Telephone: +353 1 687 5758 Email: denise.dunne@cystinosis-europe.eu

Cystinosis Support Network Europe, trading as Cystinosis Network Europe is registered in Ireland
Company number 670605, Registered Charity Number 20206325