How to contact us:

CNE is delighted to have member organisations from across Europe, and some from further afield.

• AIRG-España
• Asociación Cistinosis España – www.grupocistinosis.org
• Associazione Cistinosi, Italy – www.cistinosi.it
• Cystinosis Foundation UK – www.cystinosis.org.uk
• Cystinosis Ireland – www.cystinosis.ie
• Cystinose-Selbsthilfe e.V., Germany – www.cystinose-selbsthilfe.de
• Dutch and Flemish Cystinosis Group – www.cystinose.nl
• Vaincre les Maladies Lysosomale (VML-France) – www.vml-asso.org
• Cystinosis Research Network – www.cystinosis.org
• Cystinosis support group Turkey
• Cystinosis support group Russia
• Cystinosis support group Australia
• Cystinosis support group South Africa
• Mexican Association of Cystinosis – www.cistinosis.org.mx

Please don’t hesitate to use the postal and email address below.

Our Partners

• Patients all over Europe living in countries not yet having a national cystinosis support group
• EURORDIS – Rare diseases Europe
• FEDERG – Fed. of Europ. Associations of patients affected by renal genetic diseases
• European reference centers and competence centers for cystinosis
• Health care providers and researchers in Europe and all over the world

Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1, Ireland

Telephone: +353 1 687 5758 Email: denise.dunne@cystinosis-europe.eu

Cystinosis Support Network Europe, trading as Cystinosis Network Europe is registered in Ireland

Company number 670605, Registered Charity Number 20206325