How to contact us:
CNE is delighted to have member organisations from across Europe, and some partners from further afield.
- Cystinosis Ireland – www.cystinosis.ie
- Cystinosis Foundation UK – www.cystinosis.org.uk
- Dutch Cystinosis Group – www.cystinose.nl
- AIRG France – www.airg-france.fr
- Cystinose France
- Asociación Cistinosis España – www.grupocistinosis.org
- Cystinosis Group Belgium
- Associazione Cistinosi, Italy – www.cistinosi.it
- Cystinose-Selbsthilfe e.V., Germany – www.cystinose-selbsthilfe.de
- Cystinosis Research Network – www.cystinosis.org
Please don’t hesitate to use the postal and email address below.
English, French, Spanish, German, Dutch mails will be answered soon, all others will take a little longer.
- Patients all over Europe living in countries not yet having a national cystinosis support group
- EURORDIS – Rare diseases Europe
- FEDERG – Fed. of Europ. Associations of patients affected by renal genetic diseases
- European reference centers and competence centers for cystinosis
- Health care providers and researchers in Europe and all over the world
Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1, Ireland
Telephone: +353 1 828 0400 Email: email@example.com