Who we are

How to contact us:

CNE is delighted to have member organisations from across Europe, and some partners from further afield.

Please don’t hesitate to use the postal and email address below.

English, French, Spanish, German, Dutch mails will be answered soon, all others will take a little longer.

Our Partners

  • Patients all over Europe living in countries not yet having a national cystinosis support group
  • EURORDIS – Rare diseases Europe
  • FEDERG – Fed. of Europ. Associations of patients affected by renal genetic diseases
  • European reference centers and competence centers for cystinosis
  • Health care providers and researchers in Europe and all over the world

Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1, Ireland

Telephone: +353 1 828 0400 Email: denise.dunne@cystinosis-europe.eu