How to contact us:
CNE is delighted to have member organisations from across Europe, and some from further afield.
- AIRG-España
- Asociación Cistinosis España – www.grupocistinosis.org
- Associazione Cistinosi, Italy – www.cistinosi.it
- Cystinosis Foundation UK – www.cystinosis.org.uk
- Cystinosis Ireland – www.cystinosis.ie
- Cystinose-Selbsthilfe e.V., Germany – www.cystinose-selbsthilfe.de
- Dutch and Flemish Cystinosis Group – www.cystinose.nl
- Vaincre les Maladies Lysosomale (VML-France) – www.vml-asso.org
- Cystinosis Research Network – www.cystinosis.org
- Cystinosis support group Turkey
- Cystinosis support group Russia
- Cystinosis support group Australia
- Cystinosis support group South Africa
- Mexican Association of Cystinosis – www.cistinosis.org.mx
Please don’t hesitate to use the postal and email address below.
Our Partners
- Patients all over Europe living in countries not yet having a national cystinosis support group
- EURORDIS – Rare diseases Europe
- FEDERG – Fed. of Europ. Associations of patients affected by renal genetic diseases
- European reference centers and competence centers for cystinosis
- Health care providers and researchers in Europe and all over the world
Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1, Ireland
Telephone: +353 1 687 5758 Email: denise.dunne@cystinosis-europe.eu
Cystinosis Support Network Europe, trading as Cystinosis Network Europe is registered in Ireland
Company number 670605, Registered Charity Number 20206325