Welcome to Cystinosis Network Europe

2020 International Cystinosis Conference, Dublin, Ireland

10 – 12 July 2020 – Save the Date!

Our colleagues in Cystinosis Ireland will be the hosts of the CNE 2020 International Cystinosis Conference, which will be held in Dublin in July.  Watch this space for more details as they are confirmed, and don’t forget to spread the word! You will find the conference page here.  You can also email denise.dunne@cystinosis-europe.eu for more details.


What does CNE do?

Curious about CNE and our work? You can download our flyer here for some introductory information.


Eight European organisations come together to support people with cystinosis and promote research and form a network.

We have a number of projects ongoing to support people living with cystinosis and their families; an international conference every two years; and the development of a Community Advisory Board in Cystinosis, with the support of EURORDIS.

Our contact details:
Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1

Tel. +353 1 687 5758