Meeting new challenges!

Welcome to this website of a new partner
in the “world of cystinosis”.


Founded in May 2016 by cystinosis groups from eight European countries we promise to work fast, so you will see here some more information soon.
Curious? You can download our flyer here for a first information.

Please use our address to contact us:
Cystinosis Network Europe
Beuthener Stra├če 15
D-40883 Ratingen
Tel. +49 2102 69627