The International Cystinosis Conference went online on Saturday 25th April!
1 day – 8 languages – 15 speakers – 20 time zones – 49 countries – 900 registered attendees! Thank you to all who joined us. The Virtual International Cystinosis Conference was a first for the global cystinosis community
What does CNE do?
Curious about CNE and our work? You can download our flyer here for some introductory information.
Eight European organisations come together to support people with cystinosis and promote research and form a network.
We have a number of projects ongoing to support people living with cystinosis and their families; an international conference every two years; and the development of a Community Advisory Board in Cystinosis, with the support of EURORDIS.
Our contact details:
Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Tel. +353 1 687 5758