Welcome to Cystinosis Network Europe

2020 International Cystinosis Conference, Dublin, Ireland

10 – 12 July 2020 – Save the Date!

We are delighted that you can now book your place at the CNE International Cystinosis Conference 2020!  Full booking and hotel details are available on our dedicated webpage Рwww.cystinosis-conference-dublin-2020.eu.

You can also email denise.dunne@cystinosis-europe.eu for more details.


What does CNE do?

Curious about CNE and our work? You can download our flyer here for some introductory information.


Eight European organisations come together to support people with cystinosis and promote research and form a network.

We have a number of projects ongoing to support people living with cystinosis and their families; an international conference every two years; and the development of a Community Advisory Board in Cystinosis, with the support of EURORDIS.

Our contact details:
Cystinosis Network Europe
c/o Cystinosis Ireland
1-2 Cavendish Row
Dublin 1

Tel. +353 1 687 5758