“The conference is like a family vacation. We meet old friends and we make new friends. The connection to international researchers and clinicians gives us an impulse on what we can improve today and also provides insights and hopes on better treatments in the future.”
Father of a 11 year old girl with cystinosis
The CNE International Conference 2026 will be hosted by Cystinosis Ireland
The family welcome event will be on the evening of 2nd July 2026, full agenda days on 3rd & 4th July, and we will close with a family celebration dinner on the evening of 4th July. The meeting will be co-chaired by Prof Atif Awan (Children’s University Hospital, Dublin, scientific chair), Anne Marie O’Dowd (chair, CNE) and Karen McCullagh (Cystinosis Ireland, family chair).
You can book to attend the conference on our dedicated booking link.
Hotel details are below, and we will update our agenda as it is confirmed.
Conference Agenda
We are working on the agenda and will post details here as soon as they are confirmed, but we will have dedicated sessions for
Updates on research and treatments coming down the track
Adults with cystinosis, including social events
Teenagers with cystinosis, including social events
Parents of people with cystinosis, at all stages
Other carers of people with cystinosis
Siblings of people with cystinosis
Social get togethers for everyone!
Translation from English to Dutch, French, German, Italian, Spanish, Turkish & Russian
Professional childcare for children up to age 12.
Conference Hotel
We are delighted to announce that we will be using the Royal Marine Hotel, Dun Laoghaire, Dublin as our conference venue. This family friendly hotel is on the south coast of Dublin, approximately 10km from the city centre, with excellent transport links to the city and surrounding areas.
The conference will provide subsidised accommodation for families travelling to the meeting. To get these rates, please contact the hotel directly by email - reservation@royalmarine.ie using booking code FAMILY323818.
The discounted rates for family attendees will be:
Single person occupancy: €120 per room
Two person occupancy: €135 per room
Family room (room types vary): €150 per room.
These rates are per night from 2nd July to 4th July and include breakfast.
Rooms at these rates are limited, so please book early!
Other attendees can avail of our discounted room rate of €160 per night for a single occupancy room or €175 for a two person room. Please also email reservation@royalmarine.ie and use booking code 323818.
Previous Conferences
You can find details of our previous conferences on our Conference Archive page
Sponsors
The CNE International Conference is kindly supported by unrestricted grants. Our sponsors include:
